PARKINSON'S DISEASE OF YOUNG ADULTS
"A whole history,"
Wednesday, September 12 to 14 hours
course Most youth are not the most numerous among people with PD (= the PcP), but still, the disruption of their lives and their lifestyles are so recognized and indifference or even contempt for corporation in respect of their situation is such it is high time that the general public meeting
The "young PcP" are not a symbol advertising campaign to sell discovered a "salad" no, they are beings in suffering, great suffering nce , whose multiple difficulties known should be routed so that we can, by holding out the hand of friendship National Solidarity offer them adequate support can improve their lives , not to mention their families, often young spouses and young children.
As for our seniors in the disease, compliance with the younger, their lives and their dignity is demonstrated by the expert knowledge of their conditions and their effective defense, and actions that they are real relief and assistance.
Because the French company has not made a cultural revolution, the only medicine took care of all the problems of chronic diseases.
Without financial means or human to approach them without time or energy either, and, worst of all, no special knowledge or training, what to do? But the research needed money and found it well! So why such a slump, where's the fire?
This is amply demonstrated in the results of a survey conducted for the World Day of April 2007 by Health Care , and on which he will quickly return, as she reveals all the behind of our country.
Thus, the image that 75% of the French MP in the year 2007, is the "sickness and trembling old man who loses his head a little ...", also representative of reality than the average French beret with his head screwed on, his stick under his arm and his bottle of Beaujolais.
- The average age at diagnosis is actually 55 to 57 years
- The largest number of patients consists of very old people aged, youth, followed their ranks .. .
- Unfortunately, this does not exclude well even younger, the frequency of their achievement appears to increase from year to year, which is not surprising because the same observation can be done now in all chronic neurodegenerative diseases, undoubtedly because of the increasing aggressiveness environmental and psychosocial factors .
Patients 20, 30 or 40 years well as older, telling several years on the Internet that their elders could not say
PD devastating personal life, family and professional marked for them the same physical problems as the oldest and which are added all the marital problems, parenting, and socio-professional yet currently unknown to any specific help.
Inadequate therapeutic range strictly drug always focused on movement disorders, forget the psychological problems constant, sensory disturbances, autonomic, behavioral, etc..
A particularly innovative report article by Professor Peter Pollack in L'Echo distributed by the Association France Parkinson, who, last June, has fully confirmed the prevalence of psychological disorders and the importance of treating all non-motor disorders.
- the intolerable iatrogenic complications, hushed up the article cited above, which describes in detail:
. In 80% of cases, motor complications (abnormal movements, brutal akinesia, motor fluctuations and mood ...),
. In 30%, psychiatric complications (visual hallucinations, auditory and olfactory disorders, apathy, paranoid delusions acute ...), and in particular the terrible complications compulsive and addictive dopaminergic therapies (games money, with or without deviance hypersexuality, compulsive shopping ...), currently reported in 16% of cases.
We are fighting them with immense difficulties, only association to do so, because it is an ethical duty above all else.
This assumption of medical responsibility and this new direction are what we hoped and are especially pleased as it accompanies the recommendations new guide for the physician-MP published in June 2007 by the High Authority of Health * , its recommendations have expanded (19 pages we are proud to assume)
Should recall the articles published over 4 years in this blog and isolated action and as always excluded from any media coverage of Association Mediapark, yet among those in distress absolute.
Mediapark became expert in the matter of obligation and has compiled a wealth of testimony by his personalized assistance, a unique treasure that certifies a serious impact on the lives of those involved a certain carelessness.
To all this, for their elders who have never been offered the possibility to express themselves online, these 5 young adults with alert on the tragic lack of social response, health and human needs of the most basic PD.
This issue revealed through their stories, French exception in MP , France is indeed the last of the major industrialized countries not to understand the specificity of this terrible disease and a failure to society in respect of these patients it is totally incapable of understanding reflects the huge delay of ethical reflection about national neurological diseases and neuropsychatriques.
Jennifer, 22 years , roll on the floor during these violent attacks of dyskinesia. Fortunately, thanks to e-mail support intergenerational coeruleus, she has already learned how to optimize older with treatment and stress management.
But what future is offered, and in case of "big seed" what will become of her when you know that French society does offered absolutely no possibility, because of his age, of any institutional support.
Catherine 44 years, has a particularly painful form akinetic it happen again to bear if all its other problems do not penalize, forcing him to constantly need help her husband, extraodinaire tenderness, and her children. It suffers morally that his illness interferes with their lives, always being the one who receives from others and that his wealth, she would offer, is trapped in his body.
Rosaria she tells about his galleys and its neuro-stimulation, a procedure that provides better undeniable for those who can benefit (10% of the current CFP), but is even more spectacular that we forget all the other symptoms that persist and evolve with her.
Corinne has the great courage to face before millions of potential viewers and sexual disorders induced by dopamine. She says, modestly but in detail, all the consequences of these effects, the huge interest of clear information and distributed to all for a prevention and early diagnosis, and emphasizes the psychological and sexual sequelae: for stop compulsive access does not erase the memory of what one has lived in shame and guilt.
As for Didier unfortunately it did not have this "luck" and his life has become for 2 years a living hell, so monstrous, so destructive, that the worst is that we do not believe possible, too énnorme. Yet it is very real is the 21st century in our country.
Didier, past perfect, as evidenced by its use as "top secret", has plunged in the first year of treatment under pure agonist. His "honeymoon" did not was so sweet. Overburdened by his gambling, he is primarily traumatized deep in his being by sexual promiscuity, he roared with SOS on the Internet.
"You know, Anne, the worst in all this is that I can not even hope the conviction of one who has abused I because his drugs have made me my own rapist soul and body.
Before they show we have listened to their desire to "tell all" and talked to tell them the necessary diplomacy and respect in their speeches about the suffering of other patients, older and other pathologies.
Demonstrate publicly in its physical and psychological problems is difficult and encourages feedback from what was believed deeply buried and forgotten.
The recording of the program showed all emotional , witnesses as technical team, including presenter
(JLD) have cried a lot on the plateau ..
All my respect to those who participated, a fantastic hold across despite the enormous weight of the psychological investment for these people, all hard hit by the disease.
They are the ones who were ahead on the track, these are their stories and comments, what they wanted to offer everyone.
Mediapark has, in his Ethics, makes no claim to any benefit provided or mission, no message could be more important than "their history" personal.
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