tremors, dyskinesias, excessive rigidity or unease make you want to change his mind?
Then look at the video below and take example on Jerome Murat .....
(click the arrow in the center)
tremors, dyskinesias, excessive rigidity or unease make you want to change his mind?
Then look at the video below and take example on Jerome Murat .....
(click the arrow in the center)
The "FREE" or "Effect Bandage
Each person with PD who knows everything can change in an instant his motor , for good or evil.
Well look at these four records personal video (click on the word video), look carefully at the face, note the change of the speech and the ease of finding English words ...
Video 1 , Video 2 , Video 3 , Video 4 .....
stimuli alter the original sensory motor disorders more or less, which may seem "last straw" in the context of a disease but is driving ....... Yet a lot of sense when you know better sensorimotor loops.
The operation of each hierarchical level of the motor command is highly dependent on the sensory information it receives. So much so that the motor system should rather be considered fully under its aspect sensorimotor . (Read HERE )
These sensory stimuli depend on:
etc. ...
Before these videos in public, we tested the effect of putting bandages (particularly loosely) about fifty people serious , USA, Quebec and France.
We noted the following results:
- a generally very positive and lasting impact on akinesia
- an almost identical effect on hypertension, pain and dystonia
- a effect varies by the tremors
cons - a variable effect on different people dyskinesias
also for dyskinesia, a British engineer has developed his side a "trick" works 100% for him and that is just as effective for others: He puts
glasses whose lenses are blue.
Look at his video HERE
For details and evidence to write annefrobert@wanadoo.fr
REALITIES 2006
(if you do not have Powerpoint, first download a free viewer HERE )
The figures come from the United Kingdom but so are what is experienced everywhere they are certainly stacked in France .
"No medication is given correctly at the right time in hospital" highlight nurses in Parkinson British
very ones who know each patients in their district ...
nine out of ten experts who conducted the study report of aggravated neurological problems due to the misapplication of prescription and over elongated lengths of stay because of these negligence or knowledge of these deficiencies stringent conditions of administration of drug therapy in PD .
The PcP * are afraid of the hospital
The Department of Health Columbia, furious wrote to each director of hospital so that these problems are immediately solved:
"Every patient should have his good drugs, good dose and this at the right time.
It is totally unacceptable that People with Parkinson's may actually worsen while being hospitalized and thereby are afraid to return to the hospital .
It has nothing to do with lack or no staff. It is human respect and listening to people. "
Read BBC News article i it
In your opinion, what's he here?
A recent testimony received, and more specialized environment!
"We are entering the service of Dr. R. perfect settings for neurostimulation.
My wife was quite disturbed (much distress) and unable to manage his medication alone, nurses also give 8 hours daily doses prescribed was beyond their strength.
I feel they spend more time to complete their papers that? to attend really sick?
As for the aides, they are often in their local chatting and relaxing tea.
An example: I see the person in the room next to my wife lying on the ground at the foot of her chair, I warn them indicating a degree of urgency and I had the distinct impression that I disturbed them;
"It's still Madame X" and they said he has had 5 minutes until one gets up and goes to see.
Basically, I was now 9:00 to 7:00 p.m. to assist my wife ....".
(Later, the same letter)
"Two spouses have PcP then recounted the experiences of living in dire rehabilitation centers X and Y.
These patients who have advanced disability levels were relatively high
"abandoned": eg the patient is strapped down almost half a day in an armchair for his safety, it is true but still ? with unable to get his medication at times fanciful left on the nightstand located 2 meters away from him.
The consequences have been catastrophic and it took some time for the patient to regain the status he had when he came into the center.
The main reason is lack of staff.
Knowing well the state of her husband, one witness said he had asked to be involved in the care or to provide transportation daily, which was refused because of fatigue related to these many trips.
Here very first article published on this blog , it was all already on here
(in August 2003 )
is also recommended you read the famous "History of Sishi Kebab", an emergency ward, told with humor, a neurostimulator, it is worth its weight ... ... Sinemet here
To fight against this terrible problem, Association Mediapark has been online since July 2004 " The words to say " a slideshow for the nursing staff as to all, free download here .
Furthermore, paper booklets are also available, inquire with your habitual association or contact Mediapark :
association-mediapark@wanadoo.fr
[* = Persons with PcP (Cum) Parkinson]
Lyon, Place Bellecour, 17 pm this afternoon
balloon releases throughout France, symbol of hope for change in their conditions of life of hundreds and hundreds of thousands of people (PCP) and their families.
First a few rare cases, collected in the thesis of Dr. D. Vincent ( here) and now a few months, fifteen, twenty, twenty-five cases with serious personal injury and family , financial and moral, even with legal consequences.
So let's talk.
ages? All
The ATCD pathological gambling, compulsive shopping or hypersexuality ? No
The dopaminergic involved? All.
doses ? Not high at all
prescriptions? Absolutely classic
consequences? Catastrophic, dramatic, monstrous ...
suicide attempts often total loss of self-esteem, depression aggravated ...
short, something to be upset and decide to "do something "
The first action TABOO TALK ABOUT IT WITHOUT
1 / For the human dramas (divorce, loss of any family environment, social relations, of its property) shall cease on or quickly, the MP is enough "rich" in disorders of any type not to add yet more misery.
2 / For that new cases are diagnosed and treated earlier
3 / For all that come forward that will help identify the statistical risks, currently estimated at less than 4 -5% of people under dopamine, the circumstances of occurrence and, especially the mechanisms that trigger these disorders without "prodrome", ie without premonitory signs.
The second action: BETTER KNOWN
1 / Finally, low risk but it can happen at anytime and under any dopaminergic treatment:
Imagine in your family, a nice and polite Mr. X, 76, maybe your father or your husband .... that after several years of MP who made it very very tired and Calm and slow turns abruptly to go out, buy women's underwear lace pink and walk in these outfits light at home, by saying he has always dreamed of being a prostitute ...
Imagine your wife so worthy and good mother, for whom the diagnosis of PD was a drama in which she has admirably drawn for the balance of the whole family, and, suddenly, the hand night without telling anyone, play casino and returned with a few thousand euros of debt, looking haggard, but without the slightest remorse, before attacking a day on websites XXX while you work to feed the family ...
You will then understand better why you MUST do something
2 / mechanisms: Several factors are involved:
- The person, not in its history, always impeccable, but his age (more common for fifty years) and in particular susceptibility testing possible without
- The molecule used, but that lack proper statistical studies for the moment and figures from the U.S. are biased requirements more frequent Pramipexole in North America
- The prescribed dose, we have seen, is not necessarily high for the trip, but the troubles worsen with the rise in the number of mg per day
- The variability of the rate of intracerebral dopamine and the famous pulsatility we are talking about for quite some time now as a key factor for triggering the motor disorders of levo-dopa-induced disease.
No surprise indeed for this factor, since both the motor control system that rewards go through the "yard" the basal ganglia, namely the sub-thalamic nucleus and its mechanisms of potentiation expressed identical for both control systems.
Without doubt, a more detailed optimization of dopaminergic treatments would help greatly to understand and curb the compulsive phenomena as dyskinesias ...
The third activity: THERAPEUTIC PROTECT OUR ACHIEVEMENTS
Do not fall into the trap of "this drug is dangerous because it causes compulsive disorder" because all are but just a little and, apart from these negative effects, their contribution our quality of life is undeniable.
So no drug-poison but a good crowd surveillance, evidence of improved and optimized and customized requirements frankly.
For " practice know everything", read here