Sunday, December 17, 2006

Boobies On Old Bodies



CHANGE OF HEAD?

tremors, dyskinesias, excessive rigidity or unease make you want to change his mind?


Then look at the video below and take example on Jerome Murat .....

(click the arrow in the center)


Saturday, November 25, 2006

Plans For A Park Bench




A NEW STAR IS

NeuroSpin

Centre of neuroimaging
nuclear magnetic resonance (MRI), yesterday.

Thursday, September 28, 2006

Broken Blood Vessel Mouth





SENSORY STIMULI

AND IMPROVING DRIVING



The "FREE" or "Effect Bandage



Each person with PD who knows everything can change in an instant his motor , for good or evil.

Well look at these four records personal video (click on the word video), look carefully at the face, note the change of the speech and the ease of finding English words ...

Video 1 , Video 2 , Video 3 , Video 4 .....


stimuli alter the original sensory motor disorders more or less, which may seem "last straw" in the context of a disease but is driving ....... Yet a lot of sense when you know better sensorimotor loops.

The operation of each hierarchical level of the motor command is highly dependent on the sensory information it receives. So much so that the motor system should rather be considered fully under its aspect sensorimotor . (Read HERE )

These sensory stimuli depend on:


  • vision. Images before our eyes (those of a narrow passage that triggers the freezing)
    . The blue color that stops dyskinesia,
  • Hearing
    . The repetitive words or metronome to help walk,
    . Multiple voices or sounds that trigger akinesia
  • Touch
    . The massages that release hypertonia,
    . The simple touch of the hand tremor that stops or dystonia
    · The sensation of cold, but blocked, and the very hot
    . The repairman is rather soft warm
    · The immersion "relieve pain and stiffness", adopt akinesia
    · The pain that causes tremors, rigidity, akinesia
    · The mechanical vibrations or sound

etc. ...

Before these videos in public, we tested the effect of putting bandages (particularly loosely) about fifty people serious , USA, Quebec and France.


We noted the following results:
- a generally very positive and lasting impact on akinesia
- an almost identical effect on hypertension, pain and dystonia
- a effect varies by the tremors
cons - a variable effect on different people dyskinesias

also for dyskinesia, a British engineer has developed his side a "trick" works 100% for him and that is just as effective for others: He puts
glasses whose lenses are blue.
Look at his video HERE


For details and evidence to write annefrobert@wanadoo.fr

Thursday, September 7, 2006

Diagram Of Connection Of Ps3 To The Tv



Monday, September 25, 2006 at 14h




And there was light ....


It had been hoped, dreamed, thought and said that ...... patients' associations should deal more directly with patients and their living conditions, and for that, working together .....
but they still hesitated .........

We wrote health plan proposals and social , Plan Parkinson for all patients for all families,
(who have largely expressed their appreciation and trust) and it was suggested that all associations share presentation Department ....................
but they still hesitated .........

was demonstrated organizing ourselves through all France joint events to better discover our disease, last April 11 that people with some either the label ....... their association have the same concerns and that the
STRENGTH ..........

It was explained that if
93% of people do not find happiness in their current associations and do not adhere then .............. need to change methods, optical and open to their problems ............

We managed to admit that the effects secondary addictive dopaminergic medications have with general information and the veil of the taboo is lifted ...

Then slowly, very large figures of Neurology supporting us, the associations have had confidence, the new ministry is good, they have finally decided, have spoken ...... .. and they will sit around the same table for a joint symposium and public, finally!

Thus, we are very pleased to announce that

under the auspices and with the assistance of
the French Federation of Neurology (Pr Y. Agid), the Association France Parkinson

and the French Federation of Parkinson's Groups (FFGP)

the Monday, September 25 next
held

to
Maison de la Chimie in Paris of 14h to 17h 30

a parliamentary seminar on the disease Parkinson
,

organized by Alain Gournac , Senator of Yvelines,
and Gérard Bapt, member of the Haute-Garonne,


Information and program here
Free registration here



chronic disease involves much more than just medicine whose intellectual and physical structures are not planned and trained to handle all facets of the problems caused.

And the current situation of PD in France demonstrates, even more glaring than in the vast majority of other diseases, society can not continue to discharge its responsibilities exclusively on the healthcare system and the dedication its professionals. Whether it

parliamentary seminar takes place is thus a sign that, gradually, by dint quiet but tenacious, and finally, our question is that consciousness has been taken that our health should be a public health priority.




"What is Our Aim?
Victory at all costs and In Spite of All Terror;
Victory, however long and hard the road May Be, Without
for victory There Is No Survival. "

Sir Winston Churchill.


(What is our objective?
victory, whatever the price, and despite all the terrible difficulties,
victory, even if the path must be long and hard,
For without victory there is no survival)


Here our "Victory" is that of having oh, favored the UNION.




Good Laptop Subwoofer



SIDE EFFECTS OF DRUGS
AFSSAPS gives voice to those concerned


AFSSAPS, French Agency for Sanitary Safety of Health Poducts, with the help of patient associations have established in June 2006 a collection of statements undesirable side effects of drugs among members and the public of these associations.

This will, over a period of at least 6 months to test in real conditions, the documents made available to patients (declaration card, user guide for details), the circuit for recovery and finally to assess the quality of information obtained.

Up now, only health professionals could report adverse reactions to drugs they could see their patients.

Soon, all patients can report adverse reactions directly without going through a health professional, completing a declaration form.

To obtain registration forms side effects in PD , simply attach FFGP (French Federation of Parkinson groupings), which reads the e-mail:
ffgp.asso @ free.fr


For more information, read the press AFSSAPS here

Thursday, August 17, 2006

Beste Cover Foundation




COPING, STRESS MANAGEMENT

AND PARKINSON'S DISEASE





The COPING is not a "psychological technique" among many others.
The term coping refers to all reactions active and conscious
or strategies used by a person to reduce the negative impact of stressors on well-being and physical in order to maintain and, where possible, improve its quality life.

The STRESS is a word used frequently but in a very narrow and different from its actual definition.
stress, this is NOT the anxiety or anguish born of a life too fast and difficult but
"the body's response to stressors and psychological and physiological
that emotions that require adaptation "


Lu recently, comment about an article on COPING WITH STRESS in PD :

" Although it is uninformative in terms of what to do , This article has the merit of pointing out how a more holistic approach parkinsonian patients is indispensable and suggest that cognitive-behavioral approach could help identify patients whose care may be difficult because of difficulties in coping with the consequences of the disease.
course remains to be proven, as is the case in other serious conditions such as heart disease or cancer, that learning strategies for "coping" more appropriate can improve the experience of Illness in everyday life. "


Currently, personal assistance for individuals and their carers will benefit from any organization at a national level.

psychological assistance for MP, considered and implemented specifically for this purpose is now only at an embryonic stage in some high-level university hospital services; elsewhere, it is a .... ante-conceptional level.

Regarding aid to coping, it is therefore not a technique to enhance already existing and established for all people, No! It's all about creating it.

Otherwise, coping come down to a work not suited to work .... made acceptance in an otherwise unacceptable and would, therefore, doomed to failure.

For this, patients and their families must first be convinced of the existence of very real problems they face and to express their legitimate right to a possible improvement in their quality of life.

Support resources usually available, the institutionalized psychotherapy, patient education and support groups, local or Internet, then appear to what they are, only some elements of personal assistance to make.

A truly effective coping nationally can be designed only when all the problems, such as sanitary office who do not belong to the people, will be on track to resolution.
Without this, any further study on coping in Parkinson's disease is an illusion, time and energy wasted, an estimate out scientific reality because the quality of life can exist only when the environment s 'it ready.

Read Article HERE a long work on "COPING and Stress Management in PD "

Wednesday, June 14, 2006

Make And Buy Your Own Wrestling Figure




PARKINSON: BE JOINT


CALL FOR TESTIMONY
Click HERE




We never talk enough them, and yet their existence and their presence we are fundamental.
If some go early or during disease, Parkinson's disease like any other chronic heavy and debilitating, and many remain there with us until After the end of the road on which, under other circumstances much happier, and often they chose vowed to go through life with us.


To make our worst days as more acceptable to help us live in daily our spouses have to say goodbye to everything they do will more then they still have capacity.

progressively involved in every moment of our lives more and more painful and difficult, they undergo the same family betrayals and a lack of progressive support and friendly are themselves subject also the isolation and social marginalization.

Compliance with an initial commitment, love, compassion, duty, love, all that is involved in the same dedication and selflessness that same honor.

As for being a "good PcP, be a good accompaniment is to be a loving person who respects herself, and in any case, certainly not someone who forgets his own totally and permanently existence to another.
But come to realize the feat is also hard to exist. Many problems
their obligations, they have usually no help or information at their fingertips.
aid the patient is at least eight hours per day and more than ten hours in a quarter of cases, not counting awakenings and nocturnal travel assistance.

To better define their needs and aid of all kinds to bring them, two members of the association here Mediapark launch an appeal for witnesses.

All those who come on this blog to better understand Parkinson's disease because they are directly involved do not hesitate a second.
Responding is primarily their spouse and they help themselves, their two
testimonies are important.
Thanks in advance to all those and all those who provide assistance.
Thanks to all the spouses to remain attached, united with ...

Thursday, June 8, 2006

Blonde Tight Sweaters



PARKINSON DISEASE

REALITIES 2006

Slideshow HERE to download

(if you do not have Powerpoint, first download a free viewer HERE )


A literature review on the MPI (idiopathic Parkinson's disease) can easily meet the data "classics", saying and repeating ad infinitum, have resulted in giving a picture incredibly wrong of this disease, not only the public but also in medical science.


These dogmas and "real truth" unquestioned lead in creating a true neuromythologie about this disease, the term is the "Pope" the MPI, Dr. Donald Calne , currently director of the Neurodegenerative Disorders Centre at UBC (Vancouver, Canada) here.


How can we get there, why is it not possible to shake the world and make him wake up to other evidence and facts?
is the problem of inertia of the customs and habits, the incredible slowness of adaptation of a scientific world that lives by "beliefs" and may have forgotten that gives every Science day in question the certainties of yesterday because she is curious to always strive to get closer to "the" truth.


The slideshow takes up only a small part of this "neuromythologie. It exposes
data of the last twenty years have changed the whole understanding pathology and clinical disease.

For those with
, it is essential to know better because we can not face an opponent as tough without knowing more.

For those who seek and caring, recalling the very foundations of scientific thinking must be daily.

Wednesday, April 26, 2006

Kidde Fire Alarm Stop




HOSPITAL AND PARKINSON


90% of non-conformities in hospital
Result: People are afraid



The figures come from the United Kingdom but so are what is experienced everywhere they are certainly stacked in France .


"No medication is given correctly at the right time in hospital" highlight nurses in Parkinson British
very ones who know each patients in their district ...

nine out of ten experts who conducted the study report of aggravated neurological problems due to the misapplication of prescription and over elongated lengths of stay because of these negligence or knowledge of these deficiencies stringent conditions of administration of drug therapy in PD .


The PcP * are afraid of the hospital

The Department of Health Columbia, furious wrote to each director of hospital so that these problems are immediately solved:

"Every patient should have his good drugs, good dose and this at the right time.

It is totally unacceptable that People with Parkinson's may actually worsen while being hospitalized and thereby are afraid to return to the hospital .

It has nothing to do with lack or no staff. It is human respect and listening to people. "

Read BBC News article i
it



In your opinion, what's he here?


A recent testimony received, and more specialized environment!

"We are entering the service of Dr. R. perfect settings for neurostimulation.

My wife was quite disturbed (much distress) and unable to manage his medication alone, nurses also give 8 hours daily doses prescribed was beyond their strength.

I feel they spend more time to complete their papers that? to attend really sick?

As for the aides, they are often in their local chatting and relaxing tea.

An example: I see the person in the room next to my wife lying on the ground at the foot of her chair, I warn them indicating a degree of urgency and I had the distinct impression that I disturbed them;

"It's still Madame X" and they said he has had 5 minutes until one gets up and goes to see.

Basically, I was now 9:00 to 7:00 p.m. to assist my wife ....".

(Later, the same letter)

"Two spouses have PcP then recounted the experiences of living in dire rehabilitation centers X and Y.

These patients who have advanced disability levels were relatively high
"abandoned": eg the patient is strapped down almost half a day in an armchair for his safety, it is true but still ? with unable to get his medication at times fanciful left on the nightstand located 2 meters away from him.

The consequences have been catastrophic and it took some time for the patient to regain the status he had when he came into the center.

The main reason is lack of staff.

Knowing well the state of her husband, one witness said he had asked to be involved in the care or to provide transportation daily, which was refused because of fatigue related to these many trips.


Here very first article published on this blog , it was all already on here
(in August 2003 )

is also recommended you read the famous "History of Sishi Kebab", an emergency ward, told with humor, a neurostimulator, it is worth its weight ... ... Sinemet here

To fight against this terrible problem, Association Mediapark has been online since July 2004 " The words to say " a slideshow for the nursing staff as to all, free download
here .

Furthermore, paper booklets are also available, inquire with your habitual association or contact Mediapark :
association-mediapark@wanadoo.fr




[* = Persons with PcP (Cum) Parkinson]

Tuesday, April 11, 2006

Ringworm How To Tell It Is Healing




Xth WORLD
OF PARKINSON'S DISEASE

Lyon, Place Bellecour, 17 pm this afternoon


balloon releases throughout France, symbol of hope for change in their conditions of life of hundreds and hundreds of thousands of people (PCP) and their families.


sign of the times:
In Barcelona yesterday, Professor Tolosa , leading to parkinsonologue World renowned explained, to PcP-two years already warned by their Internet messengers, that, indeed, the lesions were neither just nor initially located at the Locus Niger but they followed the six stages of Braak As everyone here knows (read here for non-yet sophisticated).

Many other concepts are known and should be joint discussions and open in a different way than the present, not to advance "Research" but improving living conditions for all of us .

If step towards healing simply seems totally out of reach, the neuronal damage is too advanced stage of our diagnoses, does little or nothing to hope
see one day soon our symptoms improved significantly even for some of us, erased as appropriate ongoing treatment, although different from the current one.

Saturday, March 11, 2006

How Long For Ice Cubes



SIDE EFFECTS COMPULSIVE
MEDICATION DOPAMINERGIC






First a few rare cases, collected in the thesis of Dr. D. Vincent ( here) and now a few months, fifteen, twenty, twenty-five cases with serious personal injury and family , financial and moral, even with legal consequences.

So let's talk.

ages? All
The ATCD pathological gambling, compulsive shopping or hypersexuality ? No
The dopaminergic involved? All.
doses ? Not high at all
prescriptions? Absolutely classic
consequences? Catastrophic, dramatic, monstrous ...
suicide attempts often total loss of self-esteem, depression aggravated ...

short, something to be upset and decide to "do something "


The first action TABOO TALK ABOUT IT WITHOUT

1 / For the human dramas (divorce, loss of any family environment, social relations, of its property) shall cease on or quickly, the MP is enough "rich" in disorders of any type not to add yet more misery.

2 / For that new cases are diagnosed and treated earlier

3 / For all that come forward that will help identify the statistical risks, currently estimated at less than 4 -5% of people under dopamine, the circumstances of occurrence and, especially the mechanisms that trigger these disorders without "prodrome", ie without premonitory signs.


The second action: BETTER KNOWN

1 / Finally, low risk but it can happen at anytime and under any dopaminergic treatment:
Imagine in your family, a nice and polite Mr. X, 76, maybe your father or your husband .... that after several years of MP who made it very very tired and Calm and slow turns abruptly to go out, buy women's underwear lace pink and walk in these outfits light at home, by saying he has always dreamed of being a prostitute ...

Imagine your wife so worthy and good mother, for whom the diagnosis of PD was a drama in which she has admirably drawn for the balance of the whole family, and, suddenly, the hand night without telling anyone, play casino and returned with a few thousand euros of debt, looking haggard, but without the slightest remorse, before attacking a day on websites XXX while you work to feed the family ...

You will then understand better why you MUST do something

2 / mechanisms: Several factors are involved:
- The person, not in its history, always impeccable, but his age (more common for fifty years) and in particular susceptibility testing possible without
- The molecule used, but that lack proper statistical studies for the moment and figures from the U.S. are biased requirements more frequent Pramipexole in North America
- The prescribed dose, we have seen, is not necessarily high for the trip, but the troubles worsen with the rise in the number of mg per day
- The variability of the rate of intracerebral dopamine and the famous pulsatility we are talking about for quite some time now as a key factor for triggering the motor disorders of levo-dopa-induced disease.

No surprise indeed for this factor, since both the motor control system that rewards go through the "yard" the basal ganglia, namely the sub-thalamic nucleus and its mechanisms of potentiation expressed identical for both control systems.
Without doubt, a more detailed optimization of dopaminergic treatments would help greatly to understand and curb the compulsive phenomena as dyskinesias ...


The third activity: THERAPEUTIC PROTECT OUR ACHIEVEMENTS

Do not fall into the trap of "this drug is dangerous because it causes compulsive disorder" because all are but just a little and, apart from these negative effects, their contribution our quality of life is undeniable.

So no drug-poison but a good crowd surveillance, evidence of improved and optimized and customized requirements frankly.

For " practice know everything", read here